Thursday, November 22, 2012


Tuesday November 22, 2011

More of the same today- back and forth. Spending as much time as I could with Andrew and always surrounded by friends and family. It was trying to switch between mom mode and sister/adult mode. The guilt hung heavy and pressed down hard. I wasn't really there for my kids and I wasn't really there for Andrew. I felt like I wanted to do more for both parties, but always felt like a failure. But there was no other option than to keep showing up and putting one foot in front of the other. There was no normal and every day and moment looked different. I knew we would survive and I knew my kids would be okay. But hospital living is not for the faint of heart. The parking, the elevators, the doctors and nurses, the machines and meds, the hospital lunchroom- it is a battlefield that nobody is comfortable with or enjoys.


Monday November 21, 2011

I don't remember much of this day other than I did lots of shuffling around- I was always going between dealing with my kids and spending time at the hospital. Wonderful friends like Kristen, Claire and Carrie all helped to care for my children so I could spend time with Andrew. Tyler would bring Sonja to the hospital so I could nurse her and we were in a constant state of passing kids back and forth. Andrew was moved from the ICU to 12 East on this day. The nurses were so good to us and gave us a double room. Not only is our immediate family so big but there are so many people that love Andrew. People were always coming and going- stopping by to say hi and spend time with Andrew. They would bring us food and make sure we had what we needed.